I wanted to take a moment to express the one reason I wanted to share my story and that is awareness. It was a headache and it always went away. I figured, between professional and personal life I thought I was doing the right thing and a doctors visit could wait. They are just going to tell me I have a headache and give me something for it. I felt like going to the doctors office was a waste of time. “Why waste a couple hours of my time?” “I have other things I can do”. I kept telling myself it can probably wait and I will get to the doctor office, but it was deeper than that.
I know now that telling myself I will be fine, only prolonged any diagnosis. I only delayed the inevitable making myself worried that maybe I was too late. I chose to disregard anything because I was simply scared they could tell me the worst. I just went about life like nothing was wrong. Just a simple headache was not going to stop me. However, one day my head just popped (figuratively not literally) and the pain was so unbearable in that split second like someone just set off something in my head. It was so painful at the moment that I could not move.
This time the pain would not stop and I was lost for words and started to worry. I finally had the courage to call the doctor and was told later on if I waited any longer I may not be here to tell my story. Rather it is 1 person or 1000 I just wanted to bring awareness of how a doctors visit can save a life or life as you know it. Being diagnosed with a rare disease is frightening but I am proud to say I survived. I may have a long road ahead but it doesn’t mean I am giving up..I am just taking it one day at a time.

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